Rare Diseases & Orphan Products Breakthrough Summit

The 2019 Rare Diseases and Orphan Products Breakthrough Summit is one of the largest gatherings of rare disease stakeholders of the year. It is your 2-day pass to join FDA and NIH leaders, physicians, CEOs, legislators, patients, researchers and others to discuss the most pressing issues facing the rare disease community.

Calling All Medical Professionals
Patients with rare diseases present unique challenges for their medical caregivers. The NORD Rare Summit provides an unprecedented opportunity to hear from 95+ speakers and participate with rare disease leaders in conversations on:

Social determinants of health in rare diseases and bias in access to diagnosis and care, and how they are being addressed
Fostering dialogue among providers, patients, and payers
Newborn screening, carrier screening and genetic/diagnostic testing
Advancing curative therapies for rare cancers
Gene therapy and overcoming challenges for both patients and manufacturers
Forge Connections
Add to your conference experience by participating in roundtable discussions, 1:1 networking and lunch and learns. Be sure to visit the poster session to view new findings and chat with researchers. The NORD Rare Summit offers opportunities that will enrich and inspire your practice for years to come.

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Rare Diseases & Orphan Products Breakthrough Summit